Juan Carrión

Juan Carrión

Juan Carrión
Cargo

President of the Spanish Federation for Rare Diseases (FEDER)

Topics

A brief guide to inform and educate about rare diseases

Every February 28 or 29, World Rare Disease Day is celebrated, an initiative that aims to raise awareness about rare diseases in order to improve access to diagnosis and treatment and achieve a better quality of life among those who suffer from them. Here are some frequently asked questions about the most important concepts, their current situation and the main complaints that affected individuals and families continue to have.   

0