FEDER (Spanish Federation for Rare Diseases)
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SMC participants
President of the Spanish Federation for Rare Diseases (FEDER)
Contents related to this centre
Every February 28 or 29, World Rare Disease Day is celebrated, an initiative that aims to raise awareness about rare diseases in order to improve access to diagnosis and treatment and achieve a better quality of life among those who suffer from them. Here are some frequently asked questions about the most important concepts, their current situation and the main complaints that affected individuals and families continue to have.